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Cystic Fibrosis:     more books (100)

Cystic Fibrosis (Genes and Disease) by Sharon Giddings, 2009-06-30 Cystic Fibrosis (Oxford Respiratory Medicine Library) by Alex Horsley, Steve Cunningham, et all 2010-11-01 Cystic Fibrosis: Handbook for Patient and Family Cystic Fibrosis: A Guide for Patient and Family Taking Cystic Fibrosis to School by Cynthia S. Henry, Cynthia S. Henry, et all 2000-09 The Power of Two: A Twin Triumph over Cystic Fibrosis by Isabel Stenzel Byrnes; Anabel Stenzel, 2007-10-05 CF vs Us: The Story of a Battle Between a Family and Cystic Fibrosis by Karen Dohren, 2008-01-29 Cystic Fibrosis by Margaret Hodson, Duncan Geddes, et all 2007-07-05 Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Other Health Conditions (Healthy Living Cookbooks) by Raman Prasad, 2008-02-01 Cystic Fibrosis: The Ultimate Teen Guide (It Happened to Me (the Ultimate Teen Guide)) by Melanie Ann Apel, 2006-04-17 Understanding Cystic Fibrosis (Understanding Health and Sickness Series) by Ph.D.Karen Hopkin, 1998-07-01 Cystic Fibrosis: Everything You Need To Know (Your Personal Health) by Wayne Kepron MDFRCPC, 2004-01-29 Living With Cystic Fibrosis (Living Well Chronic Conditions) by Susan Heinrichs Gray, 2002-08 The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease by Keith Wailoo, Stephen Pemberton, 2006-04-20

lists with details

161. Cystic Fibrosis? Welcome To Brandon's World
     Site about a boy with CF.  
     http://personalpages.tds.net/~dhargrov/
     
     Extractions: With your help we can find a cure H ELLO. My name is Brandon Hargroves. I have Cystic Fibrosis, which is a very serious disorder that affects my life. It is genetic so you can't "catch" it. At birth I had three surgeries and had about a third of my intestines removed. I have had 6 sinus surgeries and will soon have another one. I take many medicines. I can't digest my food without my enzymes. I spend between 2 to 3 hours each day doing breathing treatments. I take lots of medicines and antibiotics. I take Pulmozyme and TOBI, which are both VERY expensive. I have had many IVs for about 2 weeks each - both at home and the hospital. I got a port-a-cath in March of 2001. Someday I may have to have a lung transplant. I am trying to save up money for my medical expenses. If you would like to help please email my mom or dad at our email address and we will email you back how you can help. Thank you for reading about "Brandon's World". Don, Sherry, and Brandon Hargroves: Learn more about Cystic Fibrosis: Cystic Fibrosis (CF) is the most common lethal genetic disorder in the United States and there is no cure. It affects children and young adults causing chronic infections. If you would like to help find a cure or learn more about CF you can contact the following sources:

162. Cystic Fibrosis Screening
     Genetics. All rights reserved. 0029297/90/4602-0019$02.00. The American Society of Human Genetics Statement on cystic fibrosis Screening.  
     http://genetics.faseb.org/genetics/ashg/policy/pol-05.htm
     
     Extractions: November 13, 1989 C. Thomas Caskey, M.D., President 1990; Michael M. Kaback, M.D., President 1991; and Arthur L. Beaudet, M.D., Board of Directors, 1988-90; as Read by Luca L. Cavalli-Sforza, M.D., President 1989, at the 40th Annual Meeting of The American Society of Human Genetics in Baltimore The recent identification of the gene associated with cystic fibrosis (CF) offers great hope for new treatments for this common disease. Even more immediately, it is now possible to identify healthy individuals who carry the CF trait. However, the current test detects only 70% of carriers, and there is little experience in the delivery of such complex information to large populations. Accordingly, there are serious reservations, and there is no concensus among geneticists regarding widespread screening for CF carriers at this time. However, there is consensus on a number of issues. First, carrier testing should be offered to couples in which either partner has a close relative affected with CF. Second, one or a few federal, foundation, or privately supported pilot programs should be conducted as soon as possible in order to gather more data regarding laboratory, educational, and counseling aspects of screening. Third, there is an immediate need for centralized quality control of laboratories conducting these tests. Fourth, it will be appropriate to begin large-scale population screening in the foreseeable future, once the test detects a larger proportion of CF carriers and more information is available regarding the issues surrounding the screening process. Until that time, it is considered premature to undertake population screening.

163. Canadian Cystic Fibrosis Foundation Toronto And District Chapter
     Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments.  
     http://www.ccfftoronto.ca/

164. Cystic Fibrosis Carrier Screening
     All rights reserved. 00029297/92/5106-0027$02.00. Statement of The American Society of Human Genetics on cystic fibrosis Carrier Screening.  
     http://genetics.faseb.org/genetics/ashg/policy/pol-10.htm
     
     Extractions: Am. J. Hum. Genet. 51:1443-1444, 1992 Address for correspondence: Walter E. Nance, M.D., Ph.D., Department of Human Genetics, Medical College of Virginia, Box 33, MCV Station, Richmond, VA. Address for reprints: Elaine Strass, Executive Office of ASHG 9650 Rockville Pike, Suite 3500, Bethesda, MD 20814. The identification in 1989 of the cystic fibrosis (CF) gene and its most common mutation immediately raised the possibility of CF carrier detection by DNA analysis. The American Society of Human Genetics (ASHG) issued a statement recommending that CF carrier testing should be made available to individuals with a family history of CF (American Society of Human Genetics Board of Directors 1990). It was also stated that screening of individuals or couples in the general population should not be offered until the rate of CF carrier detection improves. An additional prerequisite emphasized the need for the establishment of effective educational and counseling programs consistent with previous widely accepted principles. An NIH workshop, convened in February 1990, reached similar conclusions (NIH Workshop on Population Screening for the Cystic Fibrosis Gene 1990). The statement of the workshop was endorsed by ASHG. Since then, substantial progress has been made in defining the mutational basis of the disease and the basic biochemical defect. As recommended by the NIH workshop, pilot projects to study the complex issues involved in offering CF carrier detection to the general population of the United States have been initiated, but substantive results are not anticipated for at least 2 years. Other pilot projects are underway in Canada and Europe. Interest in CF carrier screening has expanded in the medical community, the biotechnology industry, and the public. Accordingly, the ASHG Ad Hoc Committee on Cystic Fibrosis Carrier Screening reassessed the issues surrounding CF carrier detection.

165. Tildonk Fights Cystic Fibrosis
     Site by a family from Belgum with a son with CF. Information on support from their community and fundraising efforts. In English.  
     http://users.skynet.be/tildonk_tegen_muco/tildonk1.htm
     
     Extractions: Home Tildonk Tegen Muco [ Tildonk Fights Cystic Fibrosis ] Tildonk Combat la Muco MailBox Sponsors Best experienced with Tildonk, is a small village in Belgium, situated between the cities of Mechelen and Leuven is part of Haacht. It has about 2,500 inhabitants. Under the impulsion of Tom and Sabine, parents of a cystic fibrosis patient, "Tildonk tegen Muco" came to life. In 1996, the first drive for the benefit of cystic fibrosis patients was a big success. How did "Tildonk tegen Muco" came to life? When, in November 94, we learned that our son Jurgen was affected with cystic fibrosis we realized, through questions from different persons, that few knew about that disease. Only those with medical background and closed affected friends knew what is was all about. When the national press published our story at the end of 1995, our goal was outreached. The biggest goal with " Tildonk tegen Muco " was and still is to familiarize people with what cystic fibrosis really is. The money received from all activities in 1996 went entirely to : $4,750 went to the "Belgische Vereiniging voor de strijd tegen Mucoviscidose" (Belgian Association for the fight against cystic fibrosis), who will use the money to support further research.

166. Barnes-Jewish Hospital - Cystic Fibrosis
     cystic fibrosis. cystic fibrosis is an inherited disease that affects the respiratory and digestive systems. As cystic fibrosis patients  
     http://www.barnesjewish.org/groups/default.asp?NavID=338

167. U.S. Study Backs Early Check For Cystic Fibrosis
     http://cnn.com/2001/HEALTH/01/09/health.cf.reut/index.html

168. Jake's Cystic Fibrosis Page
     cystic fibrosis Page with the CFAM newsletter.  
     http://www.angelfire.com/mo2/cf/index.html
     
     Extractions: Hello my name is Jake Shasserre. I have had Cystic Fibrosis ever since I was born. This page was made to the help people learn what the diesease is and how to fight it. Its been a while since i updated so i will start doing it now. It will take me about a week for the new newsletter. So until then the same old stuff.

169. Finding May Shed New Light On Cystic Fibrosis
     http://cnn.com/2001/HEALTH/conditions/03/01/cystic.fibrosis.ap/index.html

170. Angela's Story About Living With Cystic Fibrosis
     Personal site by a girl with CF.  
     http://www.faculty.fairfield.edu/fleitas/angela.html

171. CNN - Potential New Approach To Cystic Fibrosis Treatment Reported - October 9,
     http://www.cnn.com/HEALTH/9910/09/cystic.fibrosis/index.html
     
     Extractions: SEATTLE (CNN) Researchers have discovered that high doses of a specific fatty acid can reduce symptoms of cystic fibrosis in mice a finding that potentially could lead to a treatment for a disease that is now incurable in humans. People with cystic fibrosis exhibit high levels of arachidonic acid (AA) and low levels of docosahexaenoic acid (DHA). Researchers who bred mice with the genetic defect that causes cystic fibrosis found that the mice exhibited the same imbalance of fatty acids.

172. Cystic Fibrosis
     Personal page by an aunt for her neice with CF.  
     http://members.tripod.com/~blackwolf54/index.html

173. Redirect Web Page
     Mother of a girl with CF has published a book which describes the story of her daughter's life with cystic fibrosis.  
     http://ourworld.compuserve.com/homepages/Pat_and_John_Cuckney/

174. Gene Testing For Birth Defect Goes Mainstream
     http://cnn.com/2001/HEALTH/conditions/10/02/cystic.fibrosis.ap/index.html

175. Federación Española Contra La Fibrosis Quística
     Translate this page Esta página usa marcos, pero su explorador no los admite.  
     http://www.fibrosis.org/

176. Ultimatesearch.com
     ultimatesearch, Home. Tue, 25 May 2004 GMT. Top Searches. • Travel • Health • Cars • Mortgage • Computers • Gifts • Flowers  
     http://www.afcee.asso.fr/

177. Index Of /HotSprings/Villa/4210
     http://www.geocities.com/HotSprings/Villa/4210/

178. [webhost.senet.com.au]
     webhost.senet.com.au  
     http://cysticfibrosis-sa.senet.com.au/

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