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Cystic Fibrosis:     more books (100)

Chronic Respiratory Disorders : Cystic Fibrosis (DVD) Cystic Fibrosis (European Respiratory Monograph) by A. K. Webb & F. A. Ratjen, 2006-04-01 Cystic Fibrosis: Directory of Authors of New Medical and Scientific Reviews With Subject Index by Science & Life Consultants Association S, 1996-05 A Parent's Guide to Cystic Fibrosis (University of Minnesota Guides to Birth and Childhood Disorders) by Burton L. Shapiro, Ralph C. Heussner, 1991-02 Family Nursing: The Case of Cystic Fibrosis by Dorothy A. Whyte, 1994-05 The 2002 Official Patient's Sourcebook on Cystic Fibrosis Cystic Fibrosis (Wellcome Witnesses to Twentieth Century Medicine) Cystic Fibrosis: Manual of Diagnosis and Management by Mary C. Goodchild, John A. Dodge, 1985-10 Textbook of Cystic Fibrosis by J.D.Lloyd- Still, 1983-09 Mucus Secretions and Cystic Fibrosis: Conference on Mucus Secretions and Cystic Fibrosis, Southern Ontario, October 24-27, 1976 (Modern Problems in Paediatrics) Troubled Dream of Genetic Medicine Ethnicity & Innovation in Tay-Sachs, Cystic Fibrosis, & Sickle Cell Disease by KeithWailo&StephenPemberton, 2006 Cystic Fibrosis (Health Alert) by Ruth Bjorklund, 2008-09 Cystic Fibrosis, Basic and Clinical Research: Proceedings of the 17th Annual Meeting of the European Working Group for Cystic Fibrosis, Copenhagen, (International Congress Series) by Niels Hoiby, 1993-04 Cystic Fibrosis (Lung Biology in Health and Disease)

lists with details

81. Copernicus Therapeutics, Inc.
    Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors.  
    http://www.cgsys.com/

82. Cystic Fibrosis Information
    cystic fibrosis Information site containing information about CF, it s symptoms, diagnosis, treatment, coping, helpful links to other sites and hope!  
    http://pw2.netcom.com/~yourman/webdoc1.htm

83. Walkentalk - Christopher Walken Home Page - Neptune Pictures
    Film and video company dedicated to the art of storytelling. Projects include Thunderpoint, The Seventh Day and the cystic fibrosis film SWAY.  
    http://neptunepictures.com/

84. Surviving Cystic Fibrosis
    1. Don t read any newspaper or book printed prior to 1992. cystic fibrosis information changes very rapidly. Surviving cystic fibrosis In Other States.  
    http://pw2.netcom.com/~yourman/cystic_a.htm
    
    Extractions: First things first..... 1. Don't read any newspaper or book printed prior to 1992. Cystic Fibrosis information changes very rapidly. There has been a tremendous amount of research in the last few years to give you an even brighter outlook toward the future. 2. Talk with your pediatrician. Chances are he/she may not be aware of the recent strides made with CF and paint the picture of gloom. That's not the way anymore! 3. Gather as much information about the illness and become knowledgeable about it. Ask questions.....Tell family and friends and mostly talk to other people in the same situation. You are not the only one! Many publications can be found on the internet. One good source is Amazon Books . Use their search function using cystic fibrosis. 4. Talk to other people with either CF or parents of children with CF. There are many exciting tips that you can learn from each other. 6. Contact Special Child Health Services Case Management Unit within your county. Every "special child" with either a birth defector serious illness must be registered with SCHS. The main resource number is in Trenton at 609-292-5676. They can refer you to the office in your county.

85. Www2.dal.ca/distsite/frank/cf.html
    GeneReviews cystic fibrosisYour browser does not support HTML frames so you must view cystic fibrosis in a slightly less readable form. Please follow this link to do so.  
    http://www2.dal.ca/distsite/frank/cf.html

86. Cystic Fibrosis - Information And Support Resources
    Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.  
    http://www.mazornet.com/genetics/cystic_fibrosis.asp

87. The Boomer Esiason Foundation - Fighting Cystic Fibrosis
    Call To Action S.1053 Genetic Information Nondiscrimination Act Last October the Senate in a bipartisan vote unanimously passed S.1053 Genetic Information  
    http://www.esiason.org/
    
    Extractions: Last October the Senate in a bipartisan vote unanimously passed S.1053 Genetic Information Nondiscrimination Act of 2003. Since then no action has been taken by our representatives in Congress. We need your help in getting this important legislation passed into law, write your U.S. representative and ask them to take action and pass S.1053.

88. Cystic Fibrosis
    cystic fibrosis national and international groups, clinics with genetic counselors and geneticists. Image cystic fibrosis. Cystic  
    http://www.kumc.edu/gec/support/cystic_f.html
    
    Extractions: International Sites: Association Quebecoise de Fibrose Kystique , Canada, french Belgian Cystic Fibrosis Association , flemish, french Cystic Fibrosis Foundation Canada, research, chapters, clinics, therapy english, french Cystic Fibrosis Worldwide merge of International Cystic Fibrosis Adults (IACFA) and International Cystic Fibrosis (Mucoviscidosis) Association ICF(M)A or (ICFMA) CF - Selbsthilfe Bundesverband e.V , german la Fibrosis Quistica (FQ), JM Pulido, Spain Fibrosis Quistica , AE González Menéndez, Spain Landsforeningen til Bekæmpelse af Cystisk Fibrose Danish CF Association Mukoviszidose e.V. (German CF Association) Nederlandse Cystic Fibrosis Stichting (Dutch CF Association, The Netherlands, English section) S.O.S. Mucoviscidose

89. 112 Voor Cystic Fibrosis [Spreek Je Moerstaal.nl]
    Actiedag van hulpverleners voor cystic fibrosis.  
    http://www.112actie.zaandamnet.nl/

90. Cystic Fibrosis: What Is It?
    Your Genes, Your Health, DNA Learning Center s multimedia guide to genetic, inherited disorders cystic fibrosis, autosomal recessive, mutation, genetic  
    http://www.ygyh.org/cf/whatisit.htm

91. Connecticut Children's Medical Center: Pulmonary Medicine
    Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis.  
    http://www.ccmckids.org/departments/pulm.htm
    
    Extractions: The Division also provides care for children and adults with cystic fibrosis as well as for children with all types of acute and chronic respiratory disease. Fiberoptic bronchoscopy, pulmonary function testing for infants and older children including exercise testing and bronchial challenge testing can be performed by members of the division. Sweat tests may be ordered by contacting the Division.

92. Cystic Fibrosis Carrier Testing: The Decision Is Yours
    This booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier What is cystic fibrosis? Cystic  
    http://www.acog.org/from_home/wellness/cf001.htm
    
    Extractions: T his booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. Carrier testing is being made available to you on a voluntary basis. Testing can be right for some people and not right for others based on many factors. These include your level of risk, your family situation, plans and needs, and your religious and spiritual beliefs. Whether or not you are tested is a personal decision that belongs to you and your baby's father. Before deciding, you should read this booklet so you understand what CF is and what carrier testing is about. On page 9 of this booklet, there is space for you to write down any questions you may have. Whether or not you are tested is a personal decision that belongs to you and your baby's father. If, after reading the booklet, you want to be tested, or simply want to know more about the test, you should tell your health care provider that you are interested in learning more about CF carrier testing. You may also want to check to make certain that the cost of CF testing is covered by your insurance company. What is cystic fibrosis?

93. Informationdocuments
    From the European Thematic Network for cystic fibrosis. In depth information in PDF.  
    http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm
    
    Extractions: Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!

94. MayoClinic.com - Cystic Fibrosis
    It used to be that most people with cystic fibrosis didn t live beyond their teens. May 20, 2004. More Information. cystic fibrosis By Mayo Clinic staff Overview  
    http://www.mayoclinic.com/invoke.cfm?id=DS00287

95. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies:
    Search results for cystic fibrosis ALLFIELDS are shown below. 1. Recruiting, Tissue Collection from People with cystic fibrosis Condition cystic fibrosis.  
    http://www.clinicaltrials.gov/search/term=cystic fibrosis

96. Connecticut Children's Medical Center: Otolaryngology
    Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway.  
    http://www.ccmckids.org/departments/otol.htm
    
    Extractions: Staff Office Locations Links The Department of Otolaryngology maintains a full service pediatric program. In addition, special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. OFFICE LOCATIONS

97. Cystic Fibrosis
    Newborn Genetic Testing Home Newborn Genetic Screening Full Medical Reports cystic fibrosis cystic fibrosis. References. cystic fibrosis.  
    http://gslc.genetics.utah.edu/units/newborn/infosheets/cf.cfm
    
    Extractions: Home ... Full Medical Reports Cystic Fibrosis Cystic fibrosis (CF) is caused by changes in a protein that controls the transfer of chloride and sodium ions (salts) across cell membranes. Disruption of salt transfer results in abnormal gland secretions and dehydration due to increased loss of salt and water during sweating. CF affects almost all of the glands in the body that secrete fluid, resulting in a variety of symptoms. Secretions may be thick and cause blockage in the pancreas, intestines and lungs. Mucus blockage also provides places for bacteria to multiply, increasing the probability of infection. CF children show poor digestion, dehydration, coughing and vomiting. As the disease progresses, teenagers show slowed growth, delayed puberty and reduced physical endurance. Adults show more serious complications such as collapsed lung, heart failure, infertility and frequent infections that eventually lead to death. Cystic fibrosis is caused by mutations in the cystic fibrosis transmembrane regulator (CFTR) gene on chromosome 7 which codes for the protein that controls ion transfer across cell membranes. Molecular analysis has identified approximately 100 mutations in the CFTR gene. Different mutations determine the severity of symptoms seen in CF patients.

98. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day
    Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Features news, volunteer opportunities and events.  
    http://www.cff.org/chapters_and_care_centers/chapter_detail.cfm?chapterID=18&

99. Cystic Fibrosis Research Directions
    Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder  
    http://www.niddk.nih.gov/health/endo/pubs/cystic/cystic.htm
    
    Extractions: Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Improved therapy has transformed CF from a disease characterized by death in early childhood to a chronic illness, with most patients living to adulthood. But despite this progress, there still is no cure for the disease and most patients eventually succumb to infections of the airways and lung failure. Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), in partnership with other components of the National Institutes of Health and the Cystic Fibrosis Foundation, continues to foster research on the molecular processes contributing to CF, exploration of gene therapy to cure the disease, and efforts to develop other new and effective treatments.

100. Welcome To Cystic Fibrosis Western Australia
     Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.  
     http://www.cysticfibrosiswa.org

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